Cancer Survivor, Spoonie, Artist, just... designing my way through life. (she/her pronouns)  Have you checked out my project: PrettySickArt.tumblr.com?

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Fucking pqi somnia can bite me.

I was in bed at like 11.slept for about an hour, woke. Up moaning and have been writhing and crying ever since. I’m medicated, I took a gummy, none of it is making nay dmsn difference. Fuck this shit.

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Today’s not doing the thing I need and want to do because fucking executive dysfunction… I just Mari kondod the shit out of my kitchen drawers. So there’s that.

Thursday, January 10, 2019

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  • Question: Hi Joy! I never thought I'd be messaging you about the dreaded essential oils discourse, but here we are. I got a heat pack for Christmas that is labelled as 'lavender' but doesn't have an ingredient list. I've been using it over the last day for cramps, and found my eyes and skin getting very irritated. I'm thinking the creator has put lavender oil on the rice or wheat, instead of adding lavender to the mixture. Do you think that could be the problem? Thanks <3 - leximaven
  • Answer:

    thebibliosphere:

    tinyparlancer:

    thebibliosphere:

    goldenshadowofthesun:

    thebibliosphere:

    It could certainly be part of the problem if you’re sensitive to it. There’s some absolutely lovely heat packs in the health store near me, but they’re all pretreated with lavender oil rather than using dried flowers, and they’ve all caused me problems, partly because they’re either using synthetic oils, and I’m allergic to synthetics more than anything else, but also (when it came to the “organic” ones) I think because there’s just too damn much of it. You could strip paint with with the fumes that come off some of them once they’ve been heated.

    It’s also worth asking, but do you experience this with anything else with lavender? It’s actually one of the more common allergies in the fragrance world, though it doesn’t get much of a mention. Probably cause everyone is too busy talking about how good it is for you lol. Either way I’d give the pack a rest and see if your symptoms subside. Sucks I know, but if you need a quick fix in the meantime, the old sock full of rice is still a great trick. https://www.instructables.com/id/Homemade-Heating-Pad/

    Best of luck, and I hope the cramps and the irritation go away!

    Seriously, it’s one of the more common fragrance allergies? I get so much grief for saying I’m allergic to the smell of lavender! The things I learn just scrolling down my dash.

    Yep! It actually caused by linalool oil, which is the thing that gives lavender its smell by reacting with the oxygen in the air, but can also make it into a skin irritant as this reaction occurs. If you’re sensitive to linalool, the more you are exposed to it, the more reactive you will become, which is a huge problem with a lot of “natural” beauty products cause lavender is in god damn everything. Synthetic lavender scent is actually a lot safer in that regard, as the linalool  gets processed at a much higher purity rate, but even then for some people it’s too much.

    So keep yourself right and don’t breathe it in! You know your own body best!

    Chamomile is also a common allergy risk as it’s in the ragweed family, so if you get hay fever from ragweed, use chamomile products (including tea) with caution, as you can inadvertently sensitize yourself to it and wind up with a genuine allergic response to it. *the more you know rainbow*

    Ugh. I started find that chamomile tea gives me a heartburny type reaction (not horrendous by any means, but noticeable for sure) and when I tried to look it up all I could find anywhere was how AMAZING chamomile is and can’t POSSIBLY cause any kind of reaction.

    Ha, yeah, nah. People always rec me peppermint tea for my acid reflux disease, and it’s like …. peppermint… relaxes the sphincter between the stomach and the esophagus and actively allows acid to escape and enter the esophagus to burn the throat…it can and will make it worse depending on your type of heartburn/reflux.

    But no, no, it works for them, so it can’t possibly do any harm. And it’s so natural too. Much better than taking icky medicines to responsibly manage your “will give you cancer one day if you don’t treat it” illness. Would you like a spoonful of arsenic too? We hear it helps the sugary bullshit go down…

    I had no idea chamomile allergy was so common. Why? Because 99% of the time when I tell someone I’m allergic to the big 3 (chamomile, jojoba and echinacea) I have to listen to 20 minutes of… Oh no way? Really? Are you sure? But chamomile is so wonderful and it’s so soothing and helpful!

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    And I have to explain, yes really. Ingested it makes me sick to my stomach and used externally I end up with hives from head to toe (thankfully I’ve only made that mistake once).

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    People are allergic to stuff. Jesus. It’s not like I choose to have my body hate these things. I’d love to be one of those adorable…. Settling in for the night with a cuppa of chamomile tea kind of gals, but unfortunately I also can’t use lotion with jojoba or take echinacea when I’m getting sick.

Source: thebibliosphere

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Are pot bots the new porn bots? Because it’s still obnoxious and a daily nuisance but I’d much rather deal with that than with having to be exposed to hard core porn gifs and pics randomly when investigating a new follower….

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Today’s executive dysfunction involves still not tackling photos… Photos by the way that I desperately WANT to do but just. Cannot. Force. Myself. To work on. But instead, reclaiming an elfa cart that got stashed in the garage during the remodel so it can be used for my beading stuff to start relocating my crafting center from my room out to the kitchen/utility room.

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And now that I’ve started working on it I can’t stop til its done.. Meanwhile 500 or so photos sit on my hard drive unedited. :headddsk:

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So, the latest update on my SS Disability Appeal nonsense.  Got a phone call today from the person (the actual human being) reviewing my appeal.  Here’s what was confirmed in that phone call:My original disability claim was approved based on (get ready for this) Cancer and Anxiety.

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NEITHER OF WHICH WERE WHY I APPLIED 4 YEARS AGO.  Like, Cancer was mentioned because I have neuropathy FROM the chemo I got to kill my cancer (uterine by the way.. NOT CERVICAL which is what the lady said on the phone… oy).  Anxiety was only mentioned in a sort of… full disclosure since they tell you to list all your various diagnoses.

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So what idiot rubber stamped me through 4 years ago clearly saw “CANCER” and went, YUP WE COVER THAT ONE!.

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The lady basically said when I explained it (3 different damn ways) oh, well yeah they would have denied that.  And i said, yes.. and 4 YEARS AGO it would have been much easier for me to fight than it is now- when I’m in exponentially more pain, and my life is infinitely more difficult..Like, if these people can’t even read the initial paperwork- jesus.  

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So what i suspect is going to happen is they’re going to deny me because what I was approved for 4 years ago isn’t the problem now (Because they effing did it wrong) in which case I’ll have to reapply I guess?  But she asked if I’d be willing to go to further Dr. appointments if they felt them necessary and of course I said yes- but you understand how difficult that is for me right?  

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I just… I was already in remission when i applied for disability.  And I applied because my pain was so bad that it affected my mobility, my ability to focus, my memory… every aspect of my life.  Like literally every piece of that form was directed to the neuropathy as the issue, not cancer (and not effing anxiety which I haven’t even needed meds for for YEARS). :sigh:.So i’ve let myself be upset and angry for about 10 minutes, and then I’m not thinking about it again until they send me the next batch of bullshit to deal with.

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Sometimes executive dysfunction means disassembling and thoroughly washing your vacuum instead of editing the photos you’re supposed to be editing and have been putting off for at least a week. :headdesk:

Cyntoia Brown Has Been Granted Clemency, Will Be Released From Prison This Year

whatbigotspost:

THANK GOODNESS!!!!!!!!!! Omg. The cynical side of me wants to brush this off has how she should have NEVER been put through this in the first place, but it’s also important to take a moment to pause and celebrate this victory. What this woman has survived, my god.

(via knitmeapony)

Source: whatbigotspost

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prettysicksupply:

Because I’m having one of these moments today, I’m going to do something I don’t usually do.  I’m going to share our monthly blog message here, instead of just hoping folks will hit our home page to read it.  

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This is part of a larger conversation that we need to be able to have within the community about the realities of being people who live with pain and illness and disability.  And if I need to be the one to start the conversation- I’m ok with that.

So here is our message for January… well, mine (SarahCate) anyway.

…The Resolution of Grief…

     Since days before the new year, you’ve no doubt been inundated with the resolutions of the able-bodied.  Losing weight, exercising more, working harder, playing harder, saving money, getting ahead…  

    Watching the flood of posts as someone with chronic pain, someone who can’t work, who often struggles even to get out of bed- it’s a bit odd.

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     I used to be a resolution maker.  Before I got sick and the world went upside down on me, I made the same resolutions most people made.  I spent years wishing I was thinner, smarter, wealthier- had a better job, had more friends, had a relationship.  I resolved to exercise more, to eat better, to get ahead.  And then I got sick.  And resolutions for personal betterment shifted into longing for improvement.  It stopped being about setting intentions and more about clinging to hopes.

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     I haven’t set actual resolutions in some years.  For one, my life has taken a track that diverges from most my age, and for another- well, looking back at years of frustration, it seemed to me that setting resolutions was simply pre-planning failure.  So I stopped.  This year though, reading post after post after post I started thinking about what I *would* resolve, if I were to take up that mantle again.  What are the things I should strive for this year?

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     And I realized there are things, within my pain-limited life that I can aspire to do better.  

1. I will recognize and respect my limitations, while listening to and honoring my body’s signals.

2. I will rest when rest is needed. (Yes, even if I’ve just gotten up. Even if I haven’t actually done anything yet).

3. I will require that others respect my limitations, and not feel ashamed for doing so.

4. I will be kind to myself.

5. I will allow myself my grief

   That last one is probably the surprise on this list for most.  But think about it.  As people with chronic conditions, disabilities, pain, illnesses (invisible and visible) we are flooded with what I like to call, positivity porn.  You see it especially vividly in the cancer community.  The power of positive thinking!  Think Positive! It could always be worse!  I met a man with no shoes, feet, legs etc.etc.etc.  

…The rest of this very long post under the break…

Keep reading

(via prettysicksupply)

Source: prettysicksupply

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Ya’ll, I actually got EVERYTHING done.  In time.

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Box for Abby: painted, sealed, loaded, giftbagged- CHECK

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Ez’s gift box: painted, uno-carded, sealed: CHECK

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3 Adorable designed-by-Auntie Sarah onesies: CHECK

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2 Uno-Themed B-day Onesies designed by Auntie-Sarah: CHECK

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5 Dozen maple-cinnamon cookie-cutter cookies: baked, decorated, divided, and packed: CHECK

1 Allergy-safe home-baked (not by me) smash cake: CHECK

1 Decorated bundt cake for everyone else to share: CHECK

2 1st birthday book gifts: boxed and ready for opening: CHECK

Camera packed up: CHECK

Battery charger found: CHECK

Battery charging: in progress

Car cleared out: CHECK

Nails done: CHECK

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Showered: CHECK

Makeup Done: CHECK

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Medication taken: CHECK

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Now I’m just… caffeinating until it’s time to load up the car and go.  :whew:

I cannot believe I actually ended up getting everything done, and still got a few hours of sleep (more’s the miracle).  I know that by the time Monday rolls around I am going to be beyond done.  I have overdone it to just… unheard of degrees since before xmas and a crash is coming.  I just hope I can hold it off until Monday…

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Annnnd one project 100% complete. I also have a thing of bath salts that wouldn’t fit in the box and a fizzy bath bomb too. There are 7 sheet face masks, a mud mask and applicator, a bunch of flavored lip glosses, a fizzy bathing bar, special soothing bath soap bar, fizzy bath salts and a thing of lotion. Plus the bath salts and bath bomb. A perfect self care kit!

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And most of what went into it, the box and contents, I either had already, or got on post Xmas sale or at dollar tree. Hooray.

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Now, cookies are all baked, animal chores are done, I need to finish the onesie project and wrapping Ezra’s actual gifts.

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Then I need to decorate the cookies and get them divvied up and packed up.

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Workin on ez’s gift box while cookie dough unchills a bit

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ok!  Today’s task list:

-pick up iron at walmart: CHECK

-iron on test design for onesie: CHECK

-paint sealer coat on abby’s box.. exterior: CHECK

-paint sealer coat on abby’s box… interior

-Bake cookies

-print and iron on final onesie

-wrap Ez’s gifts

-decorate cookies

-pick up bundt cake: leaving now

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It’s hard to capture the color right with my phone, but it looks really good.

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Making progress