Fucking pqi somnia can bite me.
I was in bed at like 11.slept for about an hour, woke. Up moaning and have been writhing and crying ever since. I’m medicated, I took a gummy, none of it is making nay dmsn difference. Fuck this shit.
Fucking pqi somnia can bite me.
I was in bed at like 11.slept for about an hour, woke. Up moaning and have been writhing and crying ever since. I’m medicated, I took a gummy, none of it is making nay dmsn difference. Fuck this shit.
Today’s executive dysfunction involves still not tackling photos… Photos by the way that I desperately WANT to do but just. Cannot. Force. Myself. To work on. But instead, reclaiming an elfa cart that got stashed in the garage during the remodel so it can be used for my beading stuff to start relocating my crafting center from my room out to the kitchen/utility room.
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And now that I’ve started working on it I can’t stop til its done.. Meanwhile 500 or so photos sit on my hard drive unedited. :headddsk:
So, the latest update on my SS Disability Appeal nonsense. Got a phone call today from the person (the actual human being) reviewing my appeal. Here’s what was confirmed in that phone call:My original disability claim was approved based on (get ready for this) Cancer and Anxiety.
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NEITHER OF WHICH WERE WHY I APPLIED 4 YEARS AGO. Like, Cancer was mentioned because I have neuropathy FROM the chemo I got to kill my cancer (uterine by the way.. NOT CERVICAL which is what the lady said on the phone… oy). Anxiety was only mentioned in a sort of… full disclosure since they tell you to list all your various diagnoses.
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So what idiot rubber stamped me through 4 years ago clearly saw “CANCER” and went, YUP WE COVER THAT ONE!.
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The lady basically said when I explained it (3 different damn ways) oh, well yeah they would have denied that. And i said, yes.. and 4 YEARS AGO it would have been much easier for me to fight than it is now- when I’m in exponentially more pain, and my life is infinitely more difficult..Like, if these people can’t even read the initial paperwork- jesus.
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So what i suspect is going to happen is they’re going to deny me because what I was approved for 4 years ago isn’t the problem now (Because they effing did it wrong) in which case I’ll have to reapply I guess? But she asked if I’d be willing to go to further Dr. appointments if they felt them necessary and of course I said yes- but you understand how difficult that is for me right?
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I just… I was already in remission when i applied for disability. And I applied because my pain was so bad that it affected my mobility, my ability to focus, my memory… every aspect of my life. Like literally every piece of that form was directed to the neuropathy as the issue, not cancer (and not effing anxiety which I haven’t even needed meds for for YEARS). :sigh:.So i’ve let myself be upset and angry for about 10 minutes, and then I’m not thinking about it again until they send me the next batch of bullshit to deal with.

Sometimes executive dysfunction means disassembling and thoroughly washing your vacuum instead of editing the photos you’re supposed to be editing and have been putting off for at least a week. :headdesk:
THANK GOODNESS!!!!!!!!!! Omg. The cynical side of me wants to brush this off has how she should have NEVER been put through this in the first place, but it’s also important to take a moment to pause and celebrate this victory. What this woman has survived, my god.
(via knitmeapony)
Source: whatbigotspost
Because I’m having one of these moments today, I’m going to do something I don’t usually do. I’m going to share our monthly blog message here, instead of just hoping folks will hit our home page to read it.
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This is part of a larger conversation that we need to be able to have within the community about the realities of being people who live with pain and illness and disability. And if I need to be the one to start the conversation- I’m ok with that.
So here is our message for January… well, mine (SarahCate) anyway.
…The Resolution of Grief…
Since days before the new year, you’ve no doubt been inundated with the resolutions of the able-bodied. Losing weight, exercising more, working harder, playing harder, saving money, getting ahead…
Watching the flood of posts as someone with chronic pain, someone who can’t work, who often struggles even to get out of bed- it’s a bit odd.
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I used to be a resolution maker. Before I got sick and the world went upside down on me, I made the same resolutions most people made. I spent years wishing I was thinner, smarter, wealthier- had a better job, had more friends, had a relationship. I resolved to exercise more, to eat better, to get ahead. And then I got sick. And resolutions for personal betterment shifted into longing for improvement. It stopped being about setting intentions and more about clinging to hopes.
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I haven’t set actual resolutions in some years. For one, my life has taken a track that diverges from most my age, and for another- well, looking back at years of frustration, it seemed to me that setting resolutions was simply pre-planning failure. So I stopped. This year though, reading post after post after post I started thinking about what I *would* resolve, if I were to take up that mantle again. What are the things I should strive for this year?
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And I realized there are things, within my pain-limited life that I can aspire to do better.
1. I will recognize and respect my limitations, while listening to and honoring my body’s signals.
2. I will rest when rest is needed. (Yes, even if I’ve just gotten up. Even if I haven’t actually done anything yet).
3. I will require that others respect my limitations, and not feel ashamed for doing so.
4. I will be kind to myself.
5. I will allow myself my grief
That last one is probably the surprise on this list for most. But think about it. As people with chronic conditions, disabilities, pain, illnesses (invisible and visible) we are flooded with what I like to call, positivity porn. You see it especially vividly in the cancer community. The power of positive thinking! Think Positive! It could always be worse! I met a man with no shoes, feet, legs etc.etc.etc.
…The rest of this very long post under the break…
(via prettysicksupply)
Source: prettysicksupply
Ya’ll, I actually got EVERYTHING done. In time.
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Box for Abby: painted, sealed, loaded, giftbagged- CHECK

Ez’s gift box: painted, uno-carded, sealed: CHECK

3 Adorable designed-by-Auntie Sarah onesies: CHECK

2 Uno-Themed B-day Onesies designed by Auntie-Sarah: CHECK

5 Dozen maple-cinnamon cookie-cutter cookies: baked, decorated, divided, and packed: CHECK
1 Allergy-safe home-baked (not by me) smash cake: CHECK
1 Decorated bundt cake for everyone else to share: CHECK
2 1st birthday book gifts: boxed and ready for opening: CHECK
Camera packed up: CHECK
Battery charger found: CHECK
Battery charging: in progress
Car cleared out: CHECK
Nails done: CHECK

Showered: CHECK
Makeup Done: CHECK

Medication taken: CHECK
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Now I’m just… caffeinating until it’s time to load up the car and go. :whew:
I cannot believe I actually ended up getting everything done, and still got a few hours of sleep (more’s the miracle). I know that by the time Monday rolls around I am going to be beyond done. I have overdone it to just… unheard of degrees since before xmas and a crash is coming. I just hope I can hold it off until Monday…



Annnnd one project 100% complete. I also have a thing of bath salts that wouldn’t fit in the box and a fizzy bath bomb too. There are 7 sheet face masks, a mud mask and applicator, a bunch of flavored lip glosses, a fizzy bathing bar, special soothing bath soap bar, fizzy bath salts and a thing of lotion. Plus the bath salts and bath bomb. A perfect self care kit!
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And most of what went into it, the box and contents, I either had already, or got on post Xmas sale or at dollar tree. Hooray.
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Now, cookies are all baked, animal chores are done, I need to finish the onesie project and wrapping Ezra’s actual gifts.
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Then I need to decorate the cookies and get them divvied up and packed up.
ok! Today’s task list:
-pick up iron at walmart: CHECK
-iron on test design for onesie: CHECK
-paint sealer coat on abby’s box.. exterior: CHECK
-paint sealer coat on abby’s box… interior
-Bake cookies
-print and iron on final onesie
-wrap Ez’s gifts
-decorate cookies
-pick up bundt cake: leaving now

It’s hard to capture the color right with my phone, but it looks really good.